A divergent parenthood: ASD and Me

Oliver Larholt recounts his education in Autism Spectrum Disorder.

Oliver Larholt knew his son Konstantine was struggling, but it wasn’t until his ASD diagnosis in 2013 that he saw the divergent parenting journey ahead. 

Being someone’s parent is one of life’s great privileges. Imagining your child’s future is a welcome diversion in the chaos of working life; every day an exercise in patience while the only thing you want is to rush home from the office to see what they learned today. To witness first breaths, smiles, and steps is deeply humbling. It all happens so fast.

Shockingly fast. Like when nursery called to say our son Konstantine’s behaviour had changed and we needed to take him to a specialist. Dizzyingly fast, like when another doctor told us that our cheerful, playful boy was locked in his own internal world. Frighteningly fast, like when his speech disappeared, and he stopped looking at us. 

It felt like our lives had suddenly jerked onto an unseen offramp- destination unknown. 

That first year was disorienting in myriad ways, but it was also galvanising. My son needed me to step up to the plate, defy the barriers, and build crucial links for support, comfort and empowerment through the rest of his life. 

And on reflection, wasn’t that always my responsibility as his father?

Step 1- Educating myself

What is ASD?

ASD, or Autism Spectrum Disorder, is not an illness. It’s a condition that targets neurological development, causing decreased social communication and repetitive or stereotypic behaviours. It is often simply referred to as “autism”.

ASD can manifest in a variety of ways, but some common symptoms include: 

  • Being unresponsive when spoken to
  • Avoiding eye contact
  • Not returning a smile
  • Not talking as much as other children, or at all
  • Not engaging in pretend play
  • Repetitive physical behaviours
  • Getting agitated by certain visual or oratory stimuli

A child can have any combination of symptoms with a wide range of severity. 

How does ASD impact a child’s life? 

For many children, life on the autistic spectrum is implicitly lonely. This is because it’s harder to communicate and form relationships with others. 

Children with ASD develop at different rates to neurotypical children, sometimes even in a different order, which can further “other” them from their peers. 

They can struggle with self-care, hygiene, time-keeping or any other number of daily life skills depending on how their symptoms manifest. These struggles can follow them into adulthood, making life seem overwhelming, and it’s not uncommon for ASD to have comorbidities like anxiety, ADHD, and depression. 

It crucial that children with ASD are given tailored, one-to-one care and support to mitigate the isolation and complications of their diagnosis.

H3- Can ASD be treated?

There is no cure for ASD. But it can be managed.

Due to the varied nature of the condition, there is no single prescribed treatment, but your GP or local autism team can help your child:

  • Develop daily living skills
  • Improve communication skills
  • Manage harmful behaviours

Comorbidities like pain or anxiety may be treated separately with therapy or medication if needed.

Step 2- Making a plan

Now I knew what we were dealing with, but the options to support our son seemed laughably limited. 

My wife and I agreed: it wasn’t good enough. 

Our son deserves the same opportunities to learn, grow, and build community as everyone else.

Children like Konstantin need early intervention and tailored support to overcome the challenges of ASD and develop essential skills for independent living. They need us to give them inclusive, supportive environments with structured routines and clear expectations to reach their full potential. The NHS wasn’t offering anything like this level of support. 

So we took matters into our own hands. 

Step 3- Taking action

There are a number of excellent charities in UK that specialise in helping children and families affected by ASD. 

They pointed us towards Applied Behavioural Analysis, an evidence-based treatment and support system that helps our son build the skills he needs to actively engage with the world.

Konny’s diagnosis changed our lives, but that’s not a bad thing. We’ve learned a lot on this road less travelled.

Over a decade later, I now work to give him the safe, constructively supportive environment he needs to thrive, and his mother started The Giving Tree Foundation to help other families like ours. Konny’s language has caught up with his peers, and we no longer worry whether he’ll have a life with dignity. He has surpassed all our expectations. 

My boy is truly remarkable; strong and brave and honest. His condition forced me to never take a moment with him for granted, and my life is fuller for it.  

Autism Scams and how to protect your family

Oliver Larholt helps parents make informed decisions for their children

Oliver Larholt discusses the fraudulent products and services that target families with ASD.

Adjusting to an autism spectrum disorder (ASD) diagnosis can be challenging, and there isn’t a great deal of support available on the NHS. This creates an opportunity for malign actors to take advantage of families who are looking for help and guidance in a difficult time. 

There are more than 700,000 autistic people in the UK, and in June 2024 it was reported that 193,203 NHS patients were awaiting an assessment for suspected autism. As MP Barry Sheerman put it in the Westminster Commission on Autism:

Healthcare fraud is big business and autism is one of its many targets. Fraudsters promote the use of interventions which can result in physical, social, psychological and financial harm.”

As the father of a child with ASD, I well understand the desperation parents feel trying to navigate a convoluted and unsupportive system. I would’ve tried anything to help my child communicate and reduce his agitation. 

That’s why this blog will discuss some prominent autism scams, as well as how to spot the dangers and protect your family.

H2- Fake Autism Treatments

There are a number of products and services that claim to “cure” or “treat” autism. But autism is not a disease or infection, and therefore often cannot be “treated” physically.  Most autism “miracle cures” are actually actively harmful. 

The following treatments are not approved by the NHS: 

GcMAF

This is an unlicensed injection made from blood cells. It is said to activate the immune system, but the research used to make the claims was withdrawn due to serious errors.

Bleaching 

This is also called Chlorine Dioxide (CD) or Mineral Miracle Solution (MMS). Ingesting it can cause nausea, vomiting, and other life-threatening conditions.

CEASE

Cease is a “program of therapy” that discourages vaccinations and instead recommends the use of nutritional supplements, in sometimes dangerous levels. 

Chelation 

Chelation therapy uses “chelating agents” to remove heavy metal toxins, like mercury, from the blood. It’s based on the theory that such metals cause autism- but there is no concrete evidence of this being either a cause or an effective treatment. 

Secretin therapy 

Secretin is a gut hormone that is purported to improve autism symptoms by improving patient digestion. However, controlled, randomised trials have shown “no significant impact” on children with ASD.

  • some vitamins, minerals and dietary supplements
  • raw camel’s milk

Do not use any of these to treat autism.

Stem cell treatments

Stem cell therapy supposes that Autism is caused by immune disfunction and inflammatory stimuli, but once again, there is no conclusive evidence that these therapies effectively treat ASD. 

Hyperbaric oxygenation

Hyperbaric oxygen therapy provides a higher concentration of oxygen to a child’s bloodstream. Sadly, this is yet another example where the evidence fails to back up the claims. 

How to spot fake treatments

It’s hard to deny the appeal of a miracle cure- but as parents we have a responsibility to be diligent in our research before trying a new treatment on our children.

Some clear warning signs that a treatment is fake include: 

  • Saying it can “cure” or that people can “recover from” autism
  • The ability to cure a variety of conditions
  • Claims to work in most people 
  • Claims to have quick results
  • Anecdotes and personal stories rather than medical evidence
  • Red flag words like “miracle”, “faith” and “trust”
  • No training or qualifications needed
  • It’s expensive
  • It’s not offered or endorsed by the NHS

Reporting fake treatments

Protect your family and other like you by stopping charlatans when you spot them. 

You can report advertisement or treatments you think are fake through the following channels: 

Products bought in England or Wales

Contact the Citizens Advice consumer helpline. 

Tel: 0808 223 1133 

Online: Citizens Advice Consumer Service Form 

Fake medicines

Visit the FakeMeds campaign on the GOV.UK website.

Adverts or fake media treatments

This may be something you see on a website or on social media. 

Complain on the Advertising Standards Authority (ASA) website.

Additional Resources: 

Spot the Scammers- Debunking Autism Cures: A Guide for Parents – Bury Council

https://www.autism.org.uk/advice-and-guidance/what-is-autism/so-called-cures

Spotting Bad Science – Warning signs of fake autism therapies – Altogether Autism

Treatments that are not recommended for autism – NHS

Supporting siblings of children with ASD

Oliver Larholt offers tools for families who also have neurotypical children.


Oliver Larholt shares the tools he uses to support his daughter growing up in a neurodiverse family.

Our daughter Athena was four when her brother was diagnosed with Autism Spectrum Disorder, or ASD. Many children feel the reduced parental attention acutely, while others become hyper protective of their sibling. We found that it was just as crucial to recognise and validate Athena’s experience as it was to name and support Konstantin’s. 

But it isn’t always easy to balance the needs of two children, even in the most straightforward of circumstances. 

Athena is now almost grown, just finishing at Woldingham School and about to set off on independent life. But in many ways she had to grow up rather quickly, and this exciting precipice she’s on comes with new anxieties. 

Here are the most important things parents of children with ASD should remember for their neurotypical children.

1. Talk

Children need to feel like they have value and importance in their families. That includes being kept informed on changes that will impact them. 

The parental instinct to protect our children may convince us to avoids difficult subjects, but this can be a disservice in the long term.

Talking to children about autism helps them understand their autistic siblings’ differences, strengths and needs.  This provides them a toolkit to manage conflict or enjoy play with their siblings, just like all children need. 

Children may lack the language to define the tension or stress in their family, but they are still aware of it. Children feel excluded when they see their parents retreat for an important conversation, especially if they aren’t then updated on decisions or changes that will impact them. 

However, it’s important to distinguish that children don’t necessarily need details. It’s just as damaging to “parentify” a sibling, but the point is to show them that you value and respect them. 

2. Listen

Part of knowing what to tell siblings relies on hearing what they want to know. 

Children tend to ask the questions they can handle, so make sure to answer the question you are asked. Try not to make it complicated or over-explain your response. 

Pay attention also to what isn’t said. Children will often try to protect their parents as much as we try to protect them, and we may miss important pieces of their experience if we aren’t paying attention. 

Listen to all the things in between the words they say directly to you.

  • How do they talk to you? 
  • What’s their body language like? 
  • What happens after you talk? Do they respond? Have questions? Go quiet?
  • How do they talk to peers and teachers? 
  • Do you ever hear them talk about life at home?

Use what you notice to inform how you support them. 

3. Give them a village

Both children with ASD and their siblings need a supporting community that understand and nurtures them. Their lives are equally distinctive and complicated, so they also need figures in their life to support and advocate for them. 

There are a few ways to build them community: 

  • Make sure their teachers understand their home situation
  • Enrol them in normal extracurricular activities
  • Encourage their hobbies and talents
  • Find a group that supports other siblings like them
  • Reach out to a charity that supports families like yours

But remember you yourself are the most important pillar in their community. What every child wants is time with their parent, so make sure to put time aside every day to chat, and make space every week to spend extended time just the two of you.

Resources: How Autism Affects Families: Challenges and Positives | Psych Central

UK charities for Autism Spectrum Disorder

Oliver Larholt’s guide to the leading charities for children with ASD

Raising a child with Autism Spectrum Disorder is rewarding but it can also be challenging. Finding the right support from peers and professionals can change the lives of neurodiverse children and their families. There are numerous organisations in the UK that help with precisely that. 

H2- Charities for Children with Autism Spectrum Disorder

Action For Children

Action for Children has a bank of information designed for children with Autism Spectrum Disorder.

Ambitious about Autism

Ambitious about Autism are a charity that run specialist schools and colleges, as well as national youth and employability programmes.

Autism Alliance 

The Autism Alliance is a network of 16 charities providing regional support to autistic people in across the UK.

Child Autism 

Child Autism helps children achieve their potential. They provide services and advice to families with an autistic child.

The National Autistic Society 

The National Autistic Society is the leading charity for autism support in the UK. They offer advice, guidance, and supportive services to children, young people and adults on the autistic spectrum.

Resources for Autism

Resources for Autism have a range of services for autistic children in London and the West Midlands. 

Sense

Sense supports children with complex disabilities, including sensory impairments. They offer play therapy, communication support, and family events.

Support for Parents 

UK Autism Spectrum Parents Support Group 

This is Facebook group offers support for anyone in the UK who is parenting an autistic child, supporting an autistic person, or is autistic themselves. They provide a safe and friendly environment to share positive, autistic-led information. 

Carers Trust

The Carers Trust operates the largest UK-wide network of local carer organisations, with 130 groups in total. They provide information, advice and support specific to their city or region.

The National Network of Parent Carer Forums

Every local authority in the UK hosts a parent carer forum where parents can influence local services and share feedback. 

Support for Families

Spectrum Support 

Spectrum charity provides free, ongoing support for children with SEND and their families, from birth to 18 years of age. 

Mencap 

Mencap advocates for people with learning disabilities and their families. They offer education support, employment programs, and respite care. Parents can take workshops on managing challenges and rights-based advocacy. 

Contact 

Contact is a charity helping families with disabled children. They bring people together and help them take action for others. They have a helpline, offer financial advice, and give health and social care support.  

YoungMinds 

YoungMinds focuses on the mental health and well-being of children, including those with special needs. They have helplines, parent guides, and early intervention programs. 

Scope 

Scope supports individuals and families with disabilities, focussing on equality and inclusion. They have an advice helpline, employment services, and offer legal support.